Usher syndrome information, advice and facts

Usher syndrome is a major cause of deafblindness in adults which affects 3-6% of the people in the UK who were born deaf or partially hearing. Usher syndrome is the most common condition that involves both hearing and vision problems. People with Usher have a genetic condition which means they are born deaf or hard of hearing, then gradually start to lose their sight. The three types of Usher syndrome are Usher syndrome type 1 (USH1), Usher syndrome type 2 (USH2), and Usher syndrome type 3 (USH3). USH1 and USH2 are the most common types. Together, they account for approximately 90-95 percent of all cases of children who have Usher syndrome. Sites listed aim to offer details of symptoms and causes plus diagnosis and treatment information.