Brittle Bone Disease (Osteogenesis Imperfecta)
ABLEize is dedicated to providing you with a whole host of disability and mobility related information, advice and facts, this section specialises in supplying a selection of websites concerned with brittle bone disease also known as osteogenesis imperfecta. It is a rare, usually inherited disorder that causes bones to break easily due to the body’s low production of collagen. There are six different types of brittle bone disease. The last two types, Type V and Type VI have been recently identified, and many articles refer to only four different types. The type of brittle bone disease indicates the degree to which the condition may impact one’s life.
Low levels of collagen characterize Type I brittle bone disease. This type is the most frequently occurring and the least severe. Bones are likely to break easily before the onset of puberty. As well, those with Type I are prone to scoliosis, extreme curvature of the spine, and may need to wear a brace as teenagers to correct the curve.
While some people are severely affected by brittle bone disease, others are able to live a relatively normal life. Find information and treatment details along with tips about managing brittle bone disease listed here here.
The only UK wide organisation providing support to people affected by the rare bone condition Osteogenesis Imperfecta (OI). Find new research and studies details with resources for sufferers and professionals along with how to get involved. Also highlights a range of merchandise.
A U.S site offering details of brittle bone diseases in children that raises funds for official research into the causes and diagnosis as well as future treatments and preventions of brittle bone disease.
Information from the National Osteoporosis Society with a printable osteogenesis imperfecta and osteoporosis factsheets, facts about the condition and how to get support.
FAQ’s on and about Brittle bone disease (osteogenesis imperfecta) written by Dr Colin R Paterson. Site explains the condition, how it is diagnosed and what treatment is currently available.
BBC news site highlighting recent studies from the University of Edinburgh that involved 25 hospitals in the UK offers new therapy that may improve the lives of people with brittle bone disease. Click to read the full story and findings.
Official information about the brittle bone disease osteoporosis with causes, treatments, prevention and what it is like living with the condition.
An interesting BBC resource article that reports on brittle bone disease and a possible connection with eating disorders in teenagers connected to a lack of calcium and a lack of regular exercise. Includes recommendations.