Tuesday, September 25, 2018

Cystic Fibrosis Information and Resources

Cystic Fibrosis is a hereditary disease that mainly affects the areas of the lungs the and digestive system often causing a progressive and ongoing disability.  Symptoms of cystic fibrosis are problems with breathing and lack of or insufficient enzyme production in the pancreas as well as having a low immune system.

Chest infections, shortness of breath and coughing/weezing are other symptoms.  All new born babies in the UK are now screened for cystic fibrosis.  Find sites and organisations with full details of symptoms diagnosis, treatment and causes of cystic fibrosis listed in this ABLEize section below.

ABLEize is dedicated to providing a broad range of resources in all areas of disability and we do this free to help.  If you have found the cystic fibrosis resources here useful please help up by passing this page details on to others that may also benefit.

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Founded in 2015, Cystic Fibrosis Care is a charity run by dedicated professional fundraisers who are also parents of children with Cystic Fibrosis. The charity helps supply essential services and equipment as well as offering practical help and support. Based in Westgarth, Snape, North Yorkshire.

Research programme of the three leading gene therapy groups in the UK. Includes Cystic Fibrosis (CF) facts and publication details. Site also includes publications of CF interest and information about funding for gene therapy.

A charity set up in 1986 to assist with holidays for children and people under the age of 18 suffering from cystic fibrosis. Includes details how to apply with holiday information.

Working to improve the lives of people with CF and to raise the profile of Cystic Fibrosis and fund research into a cure.

A world-wide cystic fibrosis resource dedicated exclusively to the cystic fibrosis community with forums, information on clinical trials, gene therapy, research and details of related events. Also offers related CF articles of interest.

Denmark based society providing details of conferences, latest news and offering a selection of links. Includes updated CF publications, care and educational resources.

News, video clips and information supplied by the NHS Choices website. Includes details of cystic fibrosis support groups with treatment information.

Information supplied by the Priory including antibiotics, organ transplants and the general complications of surgery.

Publication details, research information and user group details supplied by the University of Dundee.

Providing information and advice about cystic fibrosis along with details about healthcare services including physiotherapy, dieticians, social workers and nurses.


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