Wednesday, May 22, 2024

Ehlers-Danlos Syndrome

Ehlers-Danlos syndrome or (EDS) for short affects approximately 1 in 5,000 live births and is a condition where abnormalities of the production of collagen result in bruising, wide scars, laxity of joints and hyperelasticity of the skin. The first sign of this disorder may be premature rupture of the membranes. There may be herniae, bleeding from the gastrointestinal tract, and dissection aneurysms of the aorta at an early age.

World’s leading expert in Ehlers-Danlos Syndrome (EDS), Professor Rodney Grahame claims that “No other condition in the history of modern medicine, has been neglected in such a way as Ehlers-Danlos Syndrome”.  Lets hope this section of ABLEize albeit it relatively small goes a little way to try to correct that statement.

Please see the sites below for symptoms, information, medical advice and facts about Ehlers-Danlos Syndrome.

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A site that explains the symptoms of Ehlers-Danlos syndrome (EDS) and offers related medical information and advice. Explains the 13 types of Ehlers-Danlos syndrome in detail along with treatments.

Offering comprehensive details of Ehlers-Danlos Syndrome along with research information and tips about coping with the condition. Explains the types of EDS and also offers support.

A support group for those with Ehlers-Danlos Syndrome (EDS). Includes a useful message board and offers related information, research news and details of how you can get involved.

Article written by Rebecca Holmes, the Edinburgh Area Coordinator for Ehlers Danlos Support UK.

Highlights this group of rare inherited conditions with professional information and resources from the NHS. Explains the types of EDS, the causes and symptoms.

An online article from giving details and facts about the different types of Ehlers-Danlos syndromes, treatment and diagnoses details. Includes image examples and readers comments.