Wednesday, December 12, 2018

Ehlers-Danlos Syndrome

Ehlers-Danlos syndrome or (EDS) for short affects approximately 1 in 5,000 live births and is a condition where abnormalities of the production of collagen result in bruising, wide scars, laxity of joints and hyperelasticity of the skin. The first sign of this disorder may be premature rupture of the membranes. There may be herniae, bleeding from the gastrointestinal tract, and dissection aneurysms of the aorta at an early age.

World’s leading expert in Ehlers-Danlos Syndrome (EDS), Professor Rodney Grahame claims that “No other condition in the history of modern medicine, has been neglected in such a way as Ehlers-Danlos Syndrome”.  Lets hope this section of ABLEize albeit it relatively small goes a little way to try to correct that statement.

Please see the sites below for symptoms, information, medical advice and facts about Ehlers-Danlos Syndrome.

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A site that explains the symptoms of Ehlers-Danlos syndrome (EDS) and offers related medical information and advice.

Offering comprehensive details of Ehlers-Danlos Syndrome along with research information and tips about coping with the condition. Explains the types of EDS and also offers support.

A support group for those with Ehlers-Danlos Syndrome (EDS). Includes a useful messageboard and offers related information.

Highlights this group of rare inherited conditions with professional information and resources from the NHS. Explains the types of EDS, the causes and symptoms.

An online article from Medicine.net giving details such as the types of Ehlers-Danlos syndromes, treatment and diagnoses details.


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