Proteus Syndrome Information
Proteus Syndrome can cause differences in the appearance and growth rate of of different parts of the body and remains an extremely rare congenital disorder that develops as you get older. There are currently only a few hundred people worldwide suffering from this condition.
Proteus Syndrome causes some parts of the body to grow larger than other parts, the cause of Proteus syndrome still remains unknown. Find symptom details, diagnosis and treatments with official Proteus syndrome information sites listed below in this dedicated section of ABLEize. If you find the following resources useful please pass the page details on so others can also benefit.
Founded to support and educate families and professionals and to raise money for research to find a cure for individuals living with Proteus Syndrome.
Offers a medical insights and overview of proteus syndrome that leads to disproportionate growth. Includes treatment details and how to spot the signs.
Offers an official NHS explanation of Proteus syndrome, the symptoms, past research and results and its history.
A comprehensive site dedicated to the memory of Michelle Gardiner who died in 2015 aged 18. Site offers Proteus syndrome facts, diagnoses details, research information and links to sites of interest.
Explains the symptoms and signs along with Proteus syndrome information from the site of the world renowned Great Ormond Street Hospital.