Monday, April 22, 2024

Spina bifida advice and information

Spina Bifida is a developing birth defect of the neural tube, partial closure of this tube results in an incompletely formed spinal cord. This causes the bones of the spine to overly open so that a portion of the spinal cord does not fully form and remain unfused. There may be a fluid filled sac surrounding the open spinal cord.

The spina bifida malformations fall into three categories: spina bifida occulta, spina bifida cystica (myelomeningocele), and meningocele. The most common location of the malformations is the lumbar and sacral areas of the spinal cord.  The exact cause of spina bifida is still unknown but it is believed that taking certain medicines while pregnant is linked to births of spina bifida children being born including a low folic acid intake during pregnancy.

Find symptoms, causes, diagnosis and treatment information sites listed in this section of ABLEize including help and support for mothers and families.

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A leading UK registered charity providing information and advice about spina bifida and hydrocephalus to individuals, families and carers.

Offers an overview of spina bifida and explains how common it is and if it can be prevented during pregnancy. Also offers help and support details.

The place to go to find all the latest news, treatments details and surgery concerning spina bifida. Includes video, news stories and readers comments.

Details of the type of spina bifida known as myelomeningocele with an explanation of the causes and how it is treated and what the expected future may hold for children with myelomeningocele.

A prominent and world umbrella organisation located in Brussels and covering the UK and Europe offering a number of publications and project downloads along with information about their aim to improve the quality of life for people with Spina Bifida and Hydrocephalus throughout the world.

Information about the condition and its long term problems highlighted by Southampton Children’s Hospital. Includes details of emotional and family support.

Spina Bifida Hydrocephalus Information Networking Equality. Set up to provide advice, information and support as well as organising UK wide events.

An organisation created by parents, for parents and their children with spina bifida. Includes news, support and FAQ.

An official NHS site providing details and symptoms of spina bifida with video clips, prevention tips and treatment information.