Tuesday, September 25, 2018

Spina bifida advice and information

Spina Bifida is a developing birth defect of the neural tube, partial closure of this tube results in an incompletely formed spinal cord. This causes the bones of the spine to overly open so that a portion of the spinal cord does not fully form and remain unfused. There may be a fluid filled sac surrounding the open spinal cord.

The spina bifida malformations fall into three categories: spina bifida occulta, spina bifida cystica (myelomeningocele), and meningocele. The most common location of the malformations is the lumbar and sacral areas of the spinal cord.  The exact cause of spina bifida is still unknown but it is believed that taking certain medicines while pregnant is linked to births of spina bifida children being born including a low folic acid intake during pregnancy.

Find symptoms, causes, diagnosis and treatment information sites listed in this section of ABLEize including help and support for mothers and families.

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A leading UK registered charity providing information and advice about spina bifida and hydrocephalus to individuals, families and carers.

Offers an overview of spina bifida and explains how common it is and if it can be prevented during pregnancy. Also offers help and support details.

Details of the type of spina bifida known as myelomeningocele with an explanation of the causes and how it is treated and what the expected future may hold for children with myelomeningocele.

A prominent and world umbrella organisation located in Brussels and covering the UK and Europe offering a number of publications and project downloads along with information about their aim to improve the quality of life for people with Spina Bifida and Hydrocephalus throughout the world.

An official NHS site providing details and symptoms of spina bifida with video clips, prevention tips and treatment information.

A non-UK sites providing excellent information as well as an educational resource for people learning about spina bifida along with downloads, resources and personal stories. Includes spina bifida support sections.

An online discussion and support forum for and about spina bifida. Includes recently diagnosed advice and information.

An informative site established in 1968 by a small group of parents whose children had Spina Bifida and/or Hydrocephalus. Includes news, fundraising detail and events plus a family support service.

An organisation created by parents, for parents and their children with spina bifida. Includes news, support and FAQ.


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