Monday, May 29, 2023

Charcot Marie Tooth Disease

Charcot Marie Tooth disease is an inherited condition and is relatively rare and affects 1 in 2,500 people with about 125,000 people affected in the UK; it is part of a group of conditions where the nerves to the muscles, mainly in the hands or lower leg fail to function properly. Symptoms are normally apparent in early childhood.

There are four different types of Charcot Marie Tooth Disease, please search through the websites listed below to find details of research information along with organisations located within the UK and world wide locations. Click on the website title, Twitter or Facebook links for more details.

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Offering information and facts about Charcot Marie Tooth Disease plus resources and a users discussion forum as well as news and an impressive resource section.

Offers assistance and support to people with Charcot Marie Tooth Disease and promotes and researches into the means by which CMT may be prevented. Includes telephone shopping and support contacts and how to donate.

Details from down under about seminars, news and ongoing research as well as related links of interest.

A non-profit new York based organisation dedicated to raising awareness, research and holding events in aid of Charcot Marie Tooth (CMT). Includes blog entries and details of how to donate.

Official Charcot-Marie-Tooth disease (CMT) information supplied by the NHS. Find symptoms, causes and a list of the types of CMT plus research and treatments.

Charcot-Marie-Tooth Syndrome information provided by Doctors with details of the condition, the types of CMTS and its management.