Monday, May 29, 2023

Huntington’s Disease

Find sites offering information, advice and assistance. Huntington’s disease affects muscle coordination and is caused by a faulty gene on chromosome 4. This gene produces a protein called Huntingtin that can lead to damage of the nerve cells in the brain. Children of parent that have Huntington’s disease have a 50-50 chance of inheriting the gene.

Huntington’s disease symptoms are abnormal or disabling body movements called chorea and can result in a severe lack of coordination. Find official and unofficial Huntington’s disease facts, symptoms diagnosis, details for adults, teens and parents in this dedicated section of ABLEize along with treatment and causes details. Click on the individual titles highlighted below to visit each website to discover more.

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Highlights current and future clinical research projects into the causes and treatment of Huntington’s disease.

Providing a comprehensive broad selection of Huntington’s disease information and resources including a discussion forum and numerous links of interest.

Dedicated to Nothern Ireland’s huntington’s diease sufferers, their familiy and carers. Includes meeting details, news and newsletters.

Offers an overview of huntington’s disease with background details and how to spot early symptoms.

Official Huntington’s disease information from the NHS with details of who is affected, causes and the symptoms. Includes a video clip, symptom details and treatment for sufferers.

Established and run by families living with Huntington’s disease in Scotland. Offers information and resources with fundraising details and contacts for advice.

Provides information and services to patients in Wales who carry the Huntington’s disease gene as well as healthcare professionals contacts for their families.

Offers support to anybody affected by the disease along with information and advice to professionals that work to support Huntington’s disease families.