Tuesday, July 5, 2022

Marfan Syndrome

Marfan syndrome is a hereditary disorder of the body’s tissues.  More specifically a group of tissues that maintain the structure of the body and support internal organs and other tissues.  It affects about 1 in 3,000 people.

Find information, facts and advice on Marfan syndrome, an inherited disorder of the connective tissues. Sites listed below offer official information with answers and questions along with the causes, diagnosis and treatments for Marfan syndrome. Please visit the highlighted links as well as the many official organisations and bodies providing Marfan syndrome details.

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An informative and comprehensible Association providing publications and information about Marfan syndrome with frequently asked questions and the Association contacts.

Offers an overview of marfan syndrome with research details and facts about living with marfan.

An NHS site with details of the symptoms of Marfan syndrome, available treatment and the causes.

A resource written for GP’s offering an insight and official information about marfan syndrome.

Provides details of the cause and prevention of marfan syndrome with video clips and information for those that have just been diagnosed.