Tuesday, September 25, 2018

Spina Bifida Support Groups

Spina bifida loosely translates to “split spine” it is a condition that affects newly born children where the spinal cord is not developed completely and results in varying degrees of paralysis and the loss of sensation to the lower limbs depending on the severity of the condition. The information sites listed in this spina bifida support group section provides an extended description and in far greater detail than Ableize can offer. Please browse through the sites below where you will find details of the condition along with support in the UK and Ireland, fundraising information, family support and also telephone contacts more information.

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A prominent and world umbrella organisation located in Brussels and covering the UK and Europe offering a number of publications and project downloads along with information about their aim to improve the quality of life for people with Spina Bifida and Hydrocephalus throughout the world.

A non-UK sites providing excellent information as well as an educational resource for people learning about spina bifida along with downloads, resources and personal stories. Includes spina bifida support sections.

An online discussion and support forum for and about spina bifida. Includes recently diagnosed advice and information.

An informative site established in 1968 by a small group of parents whose children had Spina Bifida and/or Hydrocephalus. Includes news, fundraising detail and events plus a family support service.

Association supporting children and adults in Scotland, with Spina Bifida, Hydrocephelus, and allied conditions. The Family Support Service can assist with information and advice on many issues associated with these conditions.