Sunday, October 20, 2019

Spina Bifida Support

Find Spina Bifida support groups. Spina bifida loosely translates to “split spine” it is a condition that affects newly born children where the spinal cord is not developed completely and results in varying degrees of paralysis and the loss of sensation to the lower limbs depending on the severity of the condition. The information sites listed in this spina bifida support group section provides an extended description and in far greater detail than ABLEize can offer. Please browse through the sites below where you will find details of the condition along with support in the UK and Ireland, fundraising information, family support and also telephone contacts more information.

Due to the limited spina bifida support within the UK we have included a selection of world-wide site due to the extra information and resources they offer.

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Information and resources from the NHS with Spina bifida symptom details, causes and available treatments. Explains in detail the different types of spina bifida with information about folic acid before and in the early stages of pregnancy.

Providing UK wide advice and support for anybody affected by spina bifida and hydrocephalus within England, Wales and Northern Ireland. Site offers details of the condition, information about events, schooling and how to get involved.

An information spina bifida site providing FAQ about FB along with U.S. stats and prevention information. Also provides localised community of support for children and adults.

An online discussion and support forum for and about spina bifida. Includes recently diagnosed advice and information.

An informative Spina Bifida support Ireland site established in 1968 by a small group of parents whose children had Spina Bifida and/or Hydrocephalus. Includes news, fundraising detail and events plus a family support service.

Brisbane, Australia providing online information, advice and support as well as working to improve the lives of children and adults with Spina Bifida. Includes useful resources.

Association supporting children and adults in Scotland, with Spina Bifida, Hydrocephelus, and allied conditions. The Family Support Service can assist with information and advice on many issues associated with these conditions.

U.S. based spina bifida organisation offering information for adults, children and professional. Includes FAQ about SB, ask an expert sections and information for expectant parents.

The Reeve Foundation is a U.S. organisation offering a detailed explanation of spina bifida, highlighting the numbers affected and the three general types of spina bifida; Spina bifida occulta, Meningocele and Myelomeningocele.


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